The Ethics and Governance of Human Genetic Databases
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Ethics and Governance of Human Genetic Databases by Matti Hayry
Book DescriptionThe Medical Biobank of Umea in Sweden, deCODE's Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank contain health data and genetic data from large populations. Some include genealogical or lifestyle information. They are resources for research in human genetics and medicine, exploring interaction between genes, lifestyle, environmental factors and health and diseases. The collection, storage and use of this data raise ethical, legal and social issues. In this book, first published in 2007, bioethics scholars examine whether existing ethical frameworks and social policies reflect people's concerns, and how they may need to change in light of new scientific and technological developments. The ethical issues of social justice, genetic discrimination, informational privacy, trust in science and consent to participation in database research are analyzed, whilst an empirical survey, conducted in the four countries, demonstrates public views of privacy and related moral values in the context of human genetic databases.
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Book DetailsISBN: 9780521856621
(228mm x 152mm x 21mm)
Imprint: Cambridge University Press
Publisher: Cambridge University Press
Publish Date: 19-Apr-2007
Country of Publication: United Kingdom
Books By Author Matti Hayry
Ethics and Governance of Human Genetic Databases, Paperback (October 2013)
In this book, first published in 2007, bioethics scholars examine the ethical, legal and social questions raised by human genetic databases.
Rationality and the Genetic Challenge, Hardback (February 2010)» View all books by Matti Hayry
Matti Hayry asks if we should make people healthier, smarter, and longer-lived if genetic and medical advances allow it.
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Author Biography - Matti Hayry
Matti Hayry is Professor of Bioethics and Philosophy of Law at the University of Manchester. Ruth Chadwick is Distinguished Research Professor at Cardiff University. Vilhjalmur Arnason is a Professor of Philosophy and Chair of the Centre for Ethics at the University of Iceland. Dr Gardar Arnason is a Lecturer in Professional Ethics at the University of Central Lancashire.
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