Shelter from the Storm
Caring for a Child with a Life-threatening Condition
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Shelter from the Storm by Daniel Tobin
Book Descriptioncritically ill and unlikely to survive. A recent Harvard University study on pediatric end-of-life care has shown that the medical community is failing such children and their families. Indeed, in their effort to be ever-hopeful and cure-oriented in the face of a child's terminal illness, they neglect to advise parents on the basics of emotional support for all family members, pediatric pain medication, and the need for making plans and worst-case preparations.Based on the National Advanced Illness Coordinated Care program and the stories and advice gleaned from co-author Joanne Hilden's years of work as a pediatric oncologist, Shelter from the Storm fills this advice-and-caregiving void. A compassionate road map to what the family may have to face, what they may be asked to decide, and how they might want to involve their child in the decision-making, Shelter from the Storm will help parents and caregivers make informed, loving, and protective choices on behalf of their children in the most trying of times.
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Book DetailsISBN: 9780738205342
(210mm x 140mm x 14mm)
Imprint: Da Capo Press Inc
Publisher: The Perseus Books Group
Publish Date: 27-Nov-2002
Country of Publication: United States
Books By Author Daniel Tobin
From Nothing, Paperback (April 2016)
From Nothing, a book-length poem in sections, explores the conflicted and exemplary life of Belgian physicist and priest Georges Lemaitre, known as "the father of the Big Bang," and his life's profound implications, through what John Barth called the principle of metaphoric means: "the writer's investiture in as many aspects of the text as possible
Double Life, Paperback (April 2004)» View all books by Daniel Tobin
Daniel Tobin's collection, 'Double Life, takes its name from a vision of humanity at once passionately earthbound and spurred by the metaphysical. These poems range from haunting meditations on the paintings of Hieronymous Bosch to a polyphonic sequence based on the life of Father Bartolomeo de Las Casas, who died in 1566.
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Author Biography - Daniel Tobin
Joanne Hilden, M.D., is the Chair of the Department of Pediatric Hematology/Oncology and Medical Director of Pediatric Palliative Care at the Children's Hospital at The Cleveland Clinic in Cleveland, Ohio. Daniel R. Tobin, M.D., piloted the FairCare program for peaceful dying at the V.A. Hospital in Albany, New York. He is now expanding the program to a network of other hospitals and consulting for insurers on end-of-life issues. Karen Lindsey is coauthor of Dr. Susan Love's Breast Book and Dr. Susan Love's Hormone Book.
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