Too Ill to Talk?
User Involvement in Palliative Care
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Too Ill to Talk? by Neil Small
Book DescriptionUser involvement has become an important part of health policy initiatives during the last decade, but how realistic is the concept and do all users want to be involved? This book brings the voices of people with serious illness, and those caring for them, into debate about how far health and social care services can reflect the views of users. Providing an overview of the literature on user involvement, the book looks at the policy and professional context within which user involvement is undertaken, in particular user involvement in pallative care. The authors discuss two key concepts - palliative care and empowerment - and analyse the role of self-help groups and new information and communication technologies in this context. The book focuses on the detailed narratives of people coping with three life-threatening illnesses - cystic fibrosis, multiple sclerosis and motor neurone disease - and in this way the views and experiences of the 'user' are brought into play to critique current policy and practice. Addressing a current health services issue in a refreshingly critical manner the text challenges the assumption that user involvement is either easy to achieve or that it is necessarily welcomed by all parties. It will be valuable reading for students on health studies courses, health professionals and policy makers in health and social care.
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Book DetailsISBN: 9780415233170
(234mm x 156mm x 15mm)
Publisher: Taylor & Francis Ltd
Publish Date: 30-Nov-2000
Country of Publication: United Kingdom
Books By Author Neil Small
Living and Dying with Dementia, Paperback (September 2007)
This book describes what might be achieved if the values and best practice of both dementia care and palliative care are brought together.
Grief, Mourning and Death Ritual, Paperback (February 2001)
Focuses on what happens after a death has taken place. Drawing on social theory and anthropology, This book reviews the ways grief, mourning and death ritual have been approached by academics and practitioners in the field. It combines reviews with illustrative examples of grief, mourning and death ritual as they manifest in specific settings.
Death, Gender and Ethnicity, Paperback (April 1997)» View all books by Neil Small
This volume examines the ways in which gender and ethnicity shape the experiences of dying and bereavement, taking as its focus the diversity of modes through which the universal event of death is encountered. Gendered parental bereavement through the death of a child is one topic examined.
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